According to the University of Chicago Medicine, one percent of Americans have celiac disease and ninety-seven percent of celiacs in the U.S. are either misdiagnosed or undiagnosed (Celiac). Celiac is an autoimmune disease that can present with over two-hundred symptoms. The Celiac Disease Foundation lists many of these symptoms, such as digestive problems, iron-deficiency anemia, fatigue, arthritis, infertility, depression, anxiety and in severe cases, cancer. Due to the plethora of symptoms that could be indicative of celiac disease, the disease often goes misdiagnosed or undiagnosed (Symptoms). Celiac disease is characterized by an autoimmune reaction to eating gluten, as described by the Mayo Clinic (Mayo). Some examples of gluten-containing grains are wheat, barley, rye, and their derivatives (Sources). Fortunately, there are many gluten-free grains. Individuals with celiac are limited to packaged products containing a maximum of twenty parts per million gluten (Means). In the words of nutritionist Tricia Thompson, “[...] a 1-ounce (28.35 grams) slice of gluten-free bread containing 20 parts per million gluten would contain 0.57 milligrams of gluten (Thompson).” That’s how seriously the gluten-free diet must be taken. Intense, I know. Celiac disease requires a lot of preparation. The only known treatment for celiac is to follow a gluten-free diet for life (Treatment). People with celiac will find that incorporating a strict gluten-free diet into their life can be difficult at first. Don’t be discouraged! Life goes on after celiac. Clinical psychologist Dr. Katie Rickel explains the power of food in our society. “We live in a food-centric society, a culture so obsessed with eating that we incorporate this behaviour in almost every social activity imaginable (Rickel).” Is it possible to live in the moment with a chronic illness like celiac disease? People with celiac must carefully consider anything that touches their lips or enters their mouths. Celiacs must be weary of the beauty products they use that may enter their mouth, as well as medications (Vann). Celiac is intense! Hang in there, it gets better. Gabriella Lind explains why people should make an effort to live in the moment in her article 7 Reasons Why You Should Live in the Moment. Some of her points are, “Being present results in decreased stress,” and “You will enjoy moments for what they are (Lind).” These are great ideas but when someone is burdened with a strict, mandatory, life-long diet, enjoying a care-free night out can be rather onerous and seemingly impossible. Don’t fret; there’s good news. With the growing number of people diagnosed with celiac every year, the demographic of individuals with the disease is on the rise (Parker). That’s why I decided to reach out to people with celiac disease around the world to get their input on this topic. Here are five tips to live by based on the real life experiences of fellow celiacs, including myself. Don’t leave home hungry. It’s not easy to find gluten-free meals on the road. Finding a snack shouldn’t be too problematic but finding a meal can be challenging. Make sure to leave home feeling full and satisfied. Don’t forget to pack a snack. Whether a person with celiac is going to prom, a wedding or a house party, they should expect that there will be no food for them. They should bring along their favourite gluten-free snack so that they can enjoy themselves like everyone else. Kind bars are a quick fix and they’re easy to transport (KIND). Ashley Gismondi, a Toronto woman living with celiac, knows first-hand what it’s like to be deprived of food for a long period of time. “Always pack your own snacks, you never know when you will get hungry on a road trip or on a plane. There’s been times where my gluten free meals never made it on a plane (Gismondi).” Continue doing all the things. People with celiac shouldn’t miss out on any experiences or opportunities due to their disease. Take Erin Smith for example. Smith, a New York-based individual with celiac was diagnosed at only two years old. Smith never allowed the disease to control her life. She recalls, “I grew up going on family vacations, going to sleepaway camp every summer, went away to college, etc. (Smith).” Surely, these experiences required careful planning, but that didn’t stop her. “I never let celiac stop me. Of course I had to learn new ways to navigate with every new chapter of my life, but I feel like I never let celiac hold me back (Smith).” Don’t live in fear, instead travel everywhere. Smith has visited twenty-three countries, thirty-seven states “and all while living with celiac and eating 100% gluten-free (Smith).” People with celiac should always bring many snacks with them and do research to find gluten-free restaurants in their travel destinations. Gismondi recommends getting “a translated card in the native language to communicate your needs about gluten containing ingredients and the importance of cross contamination (Gismondi).” Find resources that can help you cope, celiac is a slippery slope. Those first few months or even years can be quite challenging. That’s why it’s so important to have a strong support system. Educate your family about your disease, speak to a nutritionist and to your gastroenterologist. Gismondi made a great point in an Email conversation with me. When she said, “Get online and connect with other individuals with Celiac Disease (Gismondi).” This is a fantastic coping strategy that many may not think of. Additionally, your gastroenterologist will likely be glad to refer you to a psychologist who can help you adjust to your new reality. Tarryn Skuy from Toronto was diagnosed with celiac disease at sixteen years old. After living with celiac for almost ten years, she has mastered the disease. Here are some words of wisdom from Skuy. “Over time, I have learned that I can't be scared to get sick in public. It can be avoided, and majority of time it is, but in order to live in the present, you have to be understanding that it could happen, and that is ok, because it's out of your control, it's what Celiac Disease is all about (Skuy).” Life is a gift, with or without celiac. You can still live in the moment and enjoy life with celiac disease. Just remember to plan and prepare for your outings. With these guidelines, nothing should stand in your way. So stick to your diet, pack some snacks and travel the world! Bon appetit! Written By: Chavy Dworkind Works Cited “Celiac Disease Facts and Figures.” The University of Chicago Medicine. Celiac Disease Center. www.cureceliacdisease.org/wp-content/uploads/341_CDCFactSheets8_FactsFigures.pdf. Accessed 24 Mar. 2019. Gismondi, Ashley. “Re: Celiac!” Message to Chavy Dworkind. 24 March 2019. E-mail. “Gluten free.” KIND. www.kindsnacks.com/ways-to-snack/by-benefit/gluten-free/. Accessed 24 Mar. 2019. “‘Gluten-Free’ Means What It Says.” FDA Food & Drug Administration. Consumer Updates. Updated 11 May 2018. www.fda.gov/ForConsumers/ConsumerUpdates/ucm363069.htm. Accessed 24 Mar. 2019. Lind, Gabriella. “7 Reasons Why You Should Live in the Moment.” REACT - What About NOW? Page 4. June 2018. classroom.google.com/u/0/w/MTYyNTUyNjM3MTNa/t/all. Accessed 24 Mar. 2019. Mayo Clinic Staff. “Celiac Disease.” Mayo Clinic. Patient Care & Health Information - Diseases & Conditions. 6 Mar. 2018. www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220. Accessed 24 Mar. 2019. Parker-Pope, Tara. “Celiac Disease Becoming More Common.” The New York Times. Well. 2 July 2009 11:17 AM. well.blogs.nytimes.com/2009/07/02/celiac-disease-becoming-more-common/. Accessed 24 Mar. 2019. Rickel, Katie. “What role does food play in my social life?” Sharecare. Health Topics - Wellness - Healthy Habits. www.sharecare.com/health/healthy-habits/what-role-food-social-life. Accessed 24 Mar. 2019. Smith, Erin. “Re: Celiac!” Message to Chavy Dworkind. 24 March 2019. E-mail. “Sources of Gluten.” Celiac Disease Foundation. celiac.org/gluten-free-living/what-is-gluten/sources-of-gluten/. Accessed 24 Mar. 2019. “Symptoms of Celiac Disease.” Celiac Disease Foundation. celiac.org/about-celiac-disease/symptoms-of-celiac-disease/. Accessed 24 Mar. 2019. Skuy, Tarryn. “Re: Celiac!” Message to Chavy Dworkind. 24-25 March 2019. E-mail. Thompson, Tricia. “How much gluten is 20 parts per million?” Gluten Free Dietitian. 6 Feb. 2008. www.glutenfreedietitian.com/how-much-gluten-is-20-parts-per-million/. Accessed 24 Mar. 2019. “Treatment of Celiac Disease.” UChicago Medicine. Celiac Disease Center - Education. www.cureceliacdisease.org/treatment/. Accessed 24 Mar. 2019. Vann, Madeline R. “There’s Gluten in That? 13 Surprising Items That Contain Gluten.” Everyday Health. Digestive Health - Celiac Disease. Last updated 20 Nov. 2014. www.everydayhealth.com/digestive-health/0313/surprising-products-that-contain-gluten. aspx. Accessed 24 Mar. 2019.
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This is the year of Tarryn Skuy. Not only does her account, My Celiac Life, have the largest following for a Celiac account on Instagram, but she is continually being recognized for her hard work: she is this year’s recipient of the Notable’s Food Influencer of the Year award. A Toronto blogger darling, Tarryn is making a huge difference in the lives of those with celiac disease, providing gluten free resources within the community. DINE sat down with Tarryn to talk about all things Toronto, and her top gluten free recommendations. What is your favourite Toronto neighbourhood? I’m a huge fan of the Yonge and Eglinton area. It’s not right in the middle of all of the hustle and bustle of downtown Toronto, and not too far north. It’s central, and near all of my favourite restaurants, and I can get downtown and up north quickly whenever I need to. Name three places you would take someone new visiting the city. Hmmm. Great question! In terms of visiting, I say the Ripley’s Aquarium is a must-see. It’s so cool to see life under water, and I actually find it very relaxing! Kensington Market is another favourite of mine. Kensington is filled with great eats (tons are gluten free too), antique shops, unique stores, and some of the best graffiti I have ever seen! And the third place would have to be visiting the Toronto Islands. I love just walking around there, seeing the homes, and nature on the island. Three favourite GF dishes in Toronto? My favourite gluten free dishes include: Literally ANY bagel at Almond Butterfly. I miss being able to just eat a bagel! Next up, any gluten free dish at Riz on Yonge. They have TONS of options, including gluten free tempura, Pad Thai, sushi and more, and they’re actually certified gluten free, which is incredible. Tied for third, Off The Hook has amazing gluten free fish and chips, which is really hard to find. They have a separate gluten free fryer, so as long as you order the gluten free items, there’s no chance of cross-contamination. The other tied for third is Pizza Libretto on King Street. They have a gluten free pizza crust which can be made in their separate gluten free pizza oven. How can you say no! (so here’s four dishes rather than three.) Most underrated GF grain? Gluten free oatmeal. It’s no doubt my-go to! I eat gluten free oatmeal for breakfast every single day. It’s what I look forward to before I go to bed every night. Some people don’t realize, but not all oatmeal is gluten free, only specific kinds are gluten free. What is your guilty pleasure? Definitely chocolate. I am a chocaholic who cannot go a day without chocolate of some sort! Of course gluten free chocolate, but it really is my guilty pleasure. I will do an extra hour of spinning to eat more chocolate in a heartbeat. Has anyone ever recognized you on the street for your blog fame? Yes – I have been stopped on the street a number of times and asked if I am “My Celiac Life.” It actually happened to me in Mexico, and that’s when I thought to myself, “Wow – I really am making a difference!” That’s something very exciting to me. If you could change one thing in Toronto, what would it be? The transportation system, and the traffic! Who is the biggest celebrity you’ve seen in Toronto? Gigi Hadid. I was working at a PR agency over one summer, and we did a Maybelline event. Gigi was there, and made a speech, and I remember upon her arrival she wanted a Tim Horton’s Iced Capp, and I swear I was so nervous to buy it for her! Are you as obsessed with Drake as the rest of the city? No – I am not a big Drake fan. I’ve actually met him in person as well, and of course got a picture, but I do not have the Toronto Drake obsession. What’s your favourite song about Toronto?Does the Canadian anthem count? Written By: Terris Schneider To check out the original article, visit DINE Magazine's website. For those of you who don't know, I moved to Chicago just about three years ago today. Prior to the big move, I had no ties to the city, and frankly, I had no idea what to expect.
When you make a big move like this, you hear all the city has to offer. Everyone shares the limitless opportunities and advantages, but most of those folks talking up city-life don't live with an autoimmune disease, especially one that affects your diet and lifestyle choices. I knew Chicago was home to a certain style of "pizza" if you could call it that, a hotdog, a pitiful (at the time) baseball team or two, popcorn, and malort, but that was it. What I came to discover over the last three years was that Chicago is home to grocery stores and restaurants galore that cater to those living with celiac disease. So, in light of my Chicago-versary, I felt it was time I shared some of my favorite food establishments for the new transplants like myself who are just starting out in the Windy City and for travellers looking to experience that sweet Summertime Chi. So with that, get packing and prepare to feast. Bon appetit! Below, I've listed some of my favorite celiac-friendly restaurants in Chicago. I laid them out by cuisine/meal type. So whether, you're making brunch plans, craving Greek or Italian food, I've got you covered. (FYI these are listed in no particular order - I love them all.) Here's the scoop: Brunch
Spy the menu here.
Spy the menu here. *Lettuce Entertain You Restaurant
Spy the brunch menu here. American
Spy the Streeterville menu here. *Lettuce Entertain You Restaurant
Spy the menu here.
Spy the menu here.
Spy the menu here.
Spy the menu here.
Spy the menu here.
Spy the menu here.
Spy the menu here. Italian
Spy the menu here.
Spy the menu here.
Spy the menu here. Mediterranean
Spy the menu here. *Lettuce Entertain You Restaurant
Spy the menu here.
Spy their DIY menu here. Sushi
Spy the Lincoln Park menu here. Steakhouse
Spy the menu here.
Spy the menu here.
Spy the menu here. Latin/Mexican
Spy the menu here.
Spy the Old Town menu here.
Spy the menu here. Fast-Casual
Spy the menu here.
Spy the menu here.
Spy the menu here.
Spy the menu here.
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